The AIDA Dataset Register » AIDA Data Sharing Policy
Overview of AIDA data sharing
This section provides entry points to the practical aspects of AIDA data sharing, at every step going from research idea to sharing data with the greater research community, and highlighting where AIDA can help.
AIDA can offer some support to non-members in steps 2-5 below (blue), but membership is required for major support and from step 6 on (green).
|Become part of AIDA|
Several ways exist. Sharing prioritized data on the data hub is one way.
|Ethical review application|
Apply to EPM for ethical review. Include data sharing aspects. AIDA can help you.
AIDA can cover costs for data hub sharing of prioritized data.
|Get research data|
Use your ethical approval to get data from caregivers and other data sources. Before disclosing data, these will assess if disclosure will lead to harm ("menprövning"). Pseudonymize and protect your data. AIDA offers support, tools and data.
Presently, AIDA only accepts anonymous data. AIDA offers examples, support and tools.
Contact an AIDA system administrator to upload data to the AIDA platform. You can use the AIDA PACS to visually inspect your data. Only you can see your data.
|Share in AIDA|
AIDA members you selectively share with can see your data. An AIDA system administrator can make a working copy for download or more advanced analyses. You will be notified of this, or asked to approve if you have explicitly requested this.
|Data hub sharing?|
AIDA encourages data hub sharing. AIDA advertises shared datasets, and makes them citable in research using DOIs.
Select data hub sharing license
In the interest of OpenScience, you should make full data available on request.
|Share outside of AIDA|
AIDA will notify you of access requests, and can facilitate contacts with requesters for data sharing options outside of AIDA, and can facilitate transfers to recipients outside AIDA based on your instructions. You can use AIDA templates as a starting point for setting up agreements for legal data sharing outside of AIDA
Internal supporting processes are described in a separate document AIDA Data sharing routines which is updated continuously.